Tuesday, September 13, 2016

Sweet Home, Zeeland

The ladies are coming back home tonight!!  KJ's recovery from surgery has been great and as I type this discharge from CHOP and packing up from the Ronald McDonald House is in progress!!
The news of today's discharge brought smiles to the faces of both KJ and Shawna this morning.  It'll be a late night but that's okay.  Not that the boys back home have had struggles surviving, shoot, 5 days was a cake walk compared to the 2 week stretches last year, but we're looking forward to getting the girls home (not sure if the girls really want to come back after their girls weekend of siteseeing!!).
 Betsy Ross House
 Famous Philly Cheesesteak
 Diaper change in a park (and big wave from KJ)
 Betsy Ross House
Putting on sun tan lotion for bus tour
Independence Square with Independence Hall in the background (a Civics/AP Gov't teachers dream)

To update you all on the medical side of things, Shawna and KJ had to be at CHOP at 6am yesterday morning for pre-op stuff.  KJ was on her way back (no pun intended) to surgery around 9am.  Dr. Hauer, the doc who has performed on KJ before, was not back in surgery much more than 30 minutes.  He informed Shawna that he thought everything looked good and was able to get a good look at her nerves around her spine and for what he saw was very optimistic about we can hopefully shoot for in the future with her ambulatory abilities (don't worry Usain Bolt, she won't be breaking any of your world records!!).  That being said, we still will not know on a lot of those issues until she gets older, but c'mon, who cares about her abilities in terms of walking, she's alright got quite the ability to smile and we love that!!  
The girls were put in the PACU (Post-anesthesia care unit) which worked out great because KJ got her own room, allowing Shawna to stay overnight with her (plus, apparently a cart comes through that unit a few times throughout the day with WAWA coffee products, free of charge....WAWA coffee became quite a staple in my diet while we were in the Philly area last year).  I think Shawna was trying to make me jealous with the WAWA stuff and she sent me a pic of about every meal she had at the Ronald McDonald House as she knows the best part of my days out there were the meals that were served!!
KJ was a bit fussy post surgery (understandably) and struggle for a few hours but with meds calmed down and was able to get some good rest and get the healing process going.






As you can see from the scar, if you've had a chance to see her scar before surgery, this now looks much more cleaned up and small with the work the "really good looking" plastic surgeon, Dr. Taylor, was able to perform (those were the adjectives Shawna used!!).  So, now when she's in her teenage years KJ may feel much better about wearing a two piece bikini on the beach....her Dad can't wait!!
Once again, we've been blown away by the support through phone calls, texts, emails, face-to-face conversations, thoughts, and prayers we've received the past few days.  Thanks to all for that/those.  Another Philly experience always helps us to remember how blessed we are as a family and always brings back some great memories of the journey we've been through over the past 13 months.  Can't wait to pick up the girls tonight in GR!!

You know it....CHOOSING JOY

-Jeff

Friday, September 9, 2016

Home Away from Home

Kierstyn and I made it to Philly this morning around 9am.  We had an early departure out of Grand Rapids and had two very quiet flights.  KJ is a rockstar on the airplane see pic below.  Delta was amazing and rearranged seating so I had a row to myself on each flight!  I'm hoping to have a repeat performance when we head home.

I tried to travel light this time & didn't haul the carseat with me which means I had to figure out public transportation.  I didn't have great luck figuring out the public transportation in Europe and followed Jeff around like a lost puppy.  And there was one time my high school girlfriends Ashley & Alison and I tried to figure out the New York Subway system and ended up just taking a cab.  But low and behold Philadelphia's SEPTA is awesome!   It was a 10 minute ride that cost me $8.  The conductor even loaded my stroller and luggage on and off the train for me too!  I rolled down off the train stop with the stroller and suitcase and to see our favorite place.

The Children's Hospital of Philadelphia


We had some time to kill since KJ's appointment wasn't til 2pm and we didn't have a place to stay yet.  The Ronald McDonald House doesn't call until the day your requested stay begins to let you know if they have availability.  I was really hoping we weren't going to be homeless but at least its hot outside if we were going to be camping out on a park bench.  We grabbed coffee and found a shaded spot in a park on Penn's campus and finally got a call that the Ronald McDonald House had a room for us, hallelujah!  We hoofed it the mile to the house and got all checked in before the appointment.



Kierstyn is pumped we didn't have to sleep on a park bench


CHOP was having their version of American Idol this afternoon


Home Sweet Home


Our Dinner tonight was "summer picnic"



KJ had sweet potatoes


Homemade peach cobbler

Jeff always likes to know what meals he's missing so I always send him pics.  Each night we have a guest chef and on the weekends we also get brunch.  I love this place, its like coming home.  The workers ask about my boys, Jeff and my mom.  Its been nine months since we were here and they still remember my name and Kierstyns.  I got to meet another Fetal Surgery mom who is from Louisana and just passed the 34 week mark.  Its so great to meet other moms, compare notes and cheer each other on. God Bless the Ronald McDonald House!

We've had a busy day and walked back and forth to CHOP twice.  I blew the tire out on my stroller and found a bike shop that fixed it for me in 20 minutes. Kierstyn and I are going to do some site-seeing this weekend and then head over for surgery bright and early Monday morning.  The surgery takes about one hour but with pre/post surgery she will be back in the operating room for closer to 2-3 hours.  Its scary to hand your baby over to surgeons but I am so thankful for the wonderful people of Philadelphia who continue to show us love.

The boys are staying busy at home.  Peyton had his first week of Spanish Immersion kindergarten and is loving it.  Myles is big man on campis (home) these days and has had a great time calling the shots.  It was tough to leave them behind this time, Myles has told me three times now that he really wanted to come with us.  Next time, bud!  Peyton has his first soccer game tomorrow that I am bummed to miss but looking forward to hearing about it on Facetime.  

Choosing Joy from PRMH,
Shawna & Kierstyn