Sunday, August 23, 2015

Children's Hospital of Philadelphia

We finally heard from the Children's Hospital of Philadelphia (CHOP) this week and confirmed a consult there for next Tuesday, August 25th.  This is what we had been hoping for but now that the consult is scheduled its getting hard to leave and not know when we will return.  We are hoping after three to four weeks recovery we will be allowed to come home but most patients who undergo the prenatal surgery end up staying in Philadelphia for the remainder of the pregnancy.  If I am allowed to come home it will be under strict bed rest with weekly follow ups in Philadelphia.

The scariest part of this whole process is not knowing how it will affect Peyton and Myles who we've only been away from for a night here and there.  The longest we've been away from Peyton was when we were in the hospital for two nights when Myles was born.  We know that children are resilient and we are so thankful to our parents who are stepping in to take over the "parenting" role for a bit.  We will have the boys with us for a great deal of our stay in Philadelphia if all works out as planned.

The consult on Tuesday will consist of a two-three hour ultrasound to rule out any other issues that were not detected from our examinations/testing here.  There will be more lab work, a physical exam, another amniocentesis and I'm sure lots of needle pricks and prodding.  We are very grateful and appreciative to even be able to make it to CHOP with their rigorous qualification process. 

We would like to send a big thank you to our friends who have sent care packages, notes, meals, texts, emails and phone-calls.  A special thank you to Carelinc Medical for the generous send off.  Leaving work and not knowing when I would see my co-workers again was way more difficult than I ever anticipated.  I am so blessed to work for a company who puts families first and support their employees.  I cannot thank my co-workers enough! 


We enjoyed our last weekend at home doing "normal" things.  Here are a few pics from our adventures. 
Crazy Drivers!

Petting the Sting Rays

Wobbly Camel Ride
(not that this is a "normal" thing we do)



Thank you for reading!
~Shawna

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